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Coups de cœur Cultura
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Diagnosed with a number of chronic illnesses between 2011 and 2014 my life was suddenly changed. I was thrown into a world of medical merry–go–rounds and confusion as I had to learn what was happening to survive body malfunctions. As it is my way, then understand the processes of change thrust upon me by the diseases. As I, like others who have chronic illnesses, have to live in a new and often limiting world until we die.
A three-part exploration of living with diseases that limit and cause me to be crippled by high levels of pain. The bits in between the good times.
1. Learning is the flailing around whilst the medical people and I untangle the different signs and symptoms in a number parts of the body from 2011 to 2014.
2. Understanding the processes of change and effects of diseases on a person overall well–being. Through understanding comes strength to withstand the brutal, unforgiving pain of arthritis flares that hit the body without warning.
3. Challenges for the health systems and health carers of all kinds, some of which I hope will quickly become obsolete. The challenges are to develop a more integrate approach for those diagnosed with chronic illness; and separately to use modern databases more effectively in medical situations.
